Susan's story
Eight-year-old Jonathon is active and energetic, but
he has autism and attention deficit hyperactivity syndrome, so he
finds it very difficult to socialise with other children or to
adapt to anything outside his normal routine. Because of this, he
spends most of his time at home.
"Jonathon's not good at playing with other children and he
recently had a major tantrum just because we got a new sofa," his
mum Sue explains. "He finds it very difficult to cope with new
things, and that can create turmoil."
Eighteen months ago, Jonathon's doctor and local social services
staff put the family in touch with the local Action for Children
short breaks project, which provides family link carers who look
after children with a range of disabilities or difficulties for a
few days each month.
The project matched up Jonathon with Susan, an experienced short
breaks carer who lives locally, and who has a 10-year-old son,
Jack. Now Jonathon goes to Susan's for a couple of days each month,
including overnight stays.
Susan takes the two boys on outings, swimming, for walks or on
picnics. Jack and Jonathon spend a lot of time just playing out in
the garden, especially in the summer. Susan can understand exactly
why Jonathon's family need a break every so often.
"It's as if Jonathon's on strings," she says. "He never stops
bouncing about and he's on the go constantly - he only sits
down to eat. He's a little darling but it must be very tiring to
have him all the time."
"Jonathon loves going to stay with his link family and it's
really good for him," says his mum, Sue. "He usually finds it
difficult to interact with other children but because he's got used
to Jack and it's just one-to-one, he doesn't find it so
overwhelming and genuinely enjoys himself. It's made him much more
confident.
"When Jonathon is at Susan's the house is calm and we can spend
some time with our younger son, Peter, who often has to take second
place when Jonathon is at home. Having Susan has meant the world to
us - it means we don't get bogged down in thinking we can't
handle things and, because we get the chance to have a regular
break, we can enjoy and appreciate being with our son."
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