Autism Awareness Week 2018 - Kausar and Daniyal's Story

Posted by / Wednesday 28 March 2018 / Disabled children and young people
Kausar_and_Daniyal

Kausar knew that something wasn’t right with her two-year-old son Daniyal, but initially she reassured herself that there was a lot going on. The family had recently moved house and, even more significantly, Daniyal had just become a big brother to twin girls, Isla and Kinza.

It was a very stressful time for the family. “When the twins were born, Daniyal saw we’d wake up in the night to feed them and he’d wake up too,” says Kausar. “He’d scream for an hour - we worried the neighbours would complain. We noticed he didn’t like noise, he didn’t maintain eye contact, he wouldn’t smile. His speech regressed too.”

Kausar urgently needed help, but leaving the house was a big challenge. Daniyal wasn’t yet walking - “I felt like I had triplets,” says Kausar.

Kausar contacted Action for Children to ask for support. Recognising how hard it would be for Kausar and her three children to come to us, we arranged to visit her at home.

That was brilliant, because if I hadn’t met the Action for Children staff face to face on that occasion, I don’t think I’d have physically got out of the house
Kausar, Daniyal's Mother talking about Action for Children's home visit

As well as looking at ways to support Daniyal, we encouraged Kausar to come along to Stay and Play sessions at our children’s centre. We knew that she found getting out with the children difficult, so we made a plan: Kausar would call us as she left the house and we would meet her in the car park and help her get the children out of the car and into the centre.

Our early intervention helped lead to Daniyal being diagnosed with autism and selective mutism. 

Emotionally it was a lot to take on, at times I felt really depressed. Getting out to those Action for Children sessions helped normalise things. We really benefited from that. We started attending a singing group which became the highlight of our week. The Action for Children support workers feel like family.
Kausar, Daniyal's Mother talking about his diagnosis and subsequent help

Kausar describes herself as a ‘mum taxi’, driving her children from nursery to sports groups to the Action for Children sessions, making sure they benefit from the same social interactions and life experiences as any other pre-schooler. And she may soon have another activity to squeeze into the diary: Daniyal loved taking part in a ballet class recently, so Kausar is hoping to make it a regular event. She hopes that all these activities will ease Daniyal’s transition into primary school in September.

Action for Children’s support has meant a lot to Kausar and her family. 

Looking back over the last two years, I don’t think I’d have been able to cope without Action for Children. They are always there for us – they do a wonderful job.
Kausar, Daniyal's Mother talking about the impact of Action for Children's help