Working together to fight for better health and social care for disabled children

Posted by / Friday 17 March 2017 / Press release
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We're part of the Disabled Children's Partnership together with 27 other charities. The aim of this coalition is to fight for better health and social care for disabled children, young people and their families.

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Today in the UK, a staggering 69% of families never receive support caring for their disabled child beyond their own close friends or family.

  • 4 in 10 families with a disabled child live in poverty
  • 49% have said their health has suffered as a result of going without every day essentials
  • 8 out of 10 family carers are at breaking point because of a lack of short breaks
  • 8 in 10 parents admitted to feeling frustrated (80%), stressed (78%) or exhausted 70% as a result.
Tahira, George and Gary

We help parents like Tahira. Her son George has autism, learning disabilities plus a life-limiting syndrome. 

Once a month, George goes to The Pines for support. Our staff are there to help children and young people like George to have fun, learn new things and make new friends while providing high quality care and support.

Our work with disabled children 

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Services make a real difference. That difference may sometimes be tricky to measure but is very real: 

  • Short breaks keep families together
  • Community services get children with disabilities into the community they are part of
  • Residential homes offer a safe and stimulating environment for children when they can no longer live with their families
  • Support when families first get a diagnosis.

The gap in health and social care services means that British families face enormous difficulties in accessing even the most basic support.

The Disabled Children’s Partnership will launch a major new campaign in England in the summer of 2017 to tackle this challenge.

With nearly half of the British public claiming not to know anyone with a disability, the campaign will bring the realities of the challenges that disabled children, young people and their families face closer to the public and decision-makers.